Adult congenital heart disease

Whether you were diagnosed as a child or discovered the disease as an adult, we can help.

Collaborative adult congenital heart disease care

We provide expert care to adults with congenital heart disease, whether your case is simple or complex. Our multidisciplinary program has specialists in numerous fields, including congenital heart surgeons, heart imaging specialists, electrophysiologists and more.

In addition to our locations in the metro Denver area at UCHealth University of Colorado Hospital in Aurora and at UCHealth Highlands Ranch Hospital, we have outreach clinics in Colorado Springs, Grand Junction, Loveland, Casper, WY, Cheyenne, WY and Billings, MT.

Treatment plans designed for you

If you need treatment for adult congenital heart disease, we’ll customize a treatment plan to help you live a longer, fuller life with your condition.

At UCHealth, a continuum of care for congenital heart disease

Man getting blood pressure checkedAdvances in medicine and technology mean that children born with congenital heart disease are living longer than ever, but may still need continued care and follow-up treatments as adults.

Our doctors, who are specifically trained in adult congenital heart disease, care for patients at UCHealth as well as at Children’s Hospital Colorado. Our team can use resources from both hospitals to provide care that neither facility could provide alone.

Congenital heart disease is when you are born with one or more abnormalities in your heart’s structure, including your valves, ventricles (pumping chambers), or large blood vessels entering and leaving the heart. This is a very common birth defect, which can alter the flow of blood through your heart as an adult, even if you were treated as a child.

Common symptoms of congenital heart disease

  • Abnormal heart rhythms (arrhythmias)
  • A bluish tint to the skin, lips and fingernails (cyanosis)
  • Shortness of breath
  • Swelling of legs (edema)
  • Tiring quickly upon exertion
  • Man with backpack snowshoeing up slopeAtrial septal defect (ASD)
  • Coarctation of the aorta
  • Eisenmenger syndrome
  • Ebstein anomaly
  • Pulmonary stenosis
  • Shone syndrome
  • Single ventricle defects and the Fontan
  • Subaortic stenosis
  • Tetralogy of Fallot
  • Transposition of the great arteries after Mustard/Senning repair or arterial switch procedure
  • Truncus arteriosus
  • Ventricular septal defect (VSD)

Our multidisciplinary adult congenital heart disease program offers diagnostic services as well as numerous invasive and minimally invasive treatment options.

Our specialists are involved in clinical trials of new minimally invasive devices and procedures.

Treatments include:

  • A care team dedicated to pregnancy and heart disease in high-risk moms with unique needs.
  • Access to advanced heart failure therapies, including left ventricular assist devices (LVAD) and heart transplant.
  • Advanced electrophysiology procedures for patients with arrhythmias.
  • High-risk surgical repair or revision of structural defects in the heart.
  • Leading-edge diagnostics and imaging.
  • Minimally invasive treatment options.
  • Numerous genetic services.

Woman doing weight trainingAnyone who has congenital heart disease should be seen in a specialized adult congenital heart disease clinic at least once. The more complex the congenital heart disease, the more important it is to get ongoing care from a specialized adult congenital heart disease clinic.

Specialized adult congenital heart disease programs at UCHealth

  • Moderate or complex heart anatomy: single ventricle, cyanosis, Fontan, interrupted aortic arch, pulmonary atresia, transposition of the great arteries (any form, any repair), truncus arteriosus, coarctation of the aorta, Ebstein anomaly, ostium primum ASD or tetralogy of Fallot.
  • Simple congenital heart disease complicated by heart failure, pulmonary hypertension, valve disease, arrhythmia and/or aortic enlargement.
  • Pregnant congenital heart disease patients or congenital heart disease patients who are considering pregnancy.

UCHealth University of Colorado Hospital is an ACHD Accredited Comprehensive Care Center from the Adult Congenital Heart Association (ACHA). 

Make an appointment at one of our adult congenital heart disease locations

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