Cancer victory thanks to Young Women’s Breast Cancer Center

June 1st, 2018

Travel and yoga feed Louisa Drouet’s soul.

So, after finishing treatment for breast cancer next month, she plans to embark on what she’s jokingly calling her “World Victory Tour.”

Starting in September, she hopes to visit friends, celebrate life and do yoga in far-flung places from Shanghai to Sydney, Mumbai, Paris, London and Washington, D.C.

Louisa Drouet does an upside-down yoga pose on a beach in Mexico. She's wearing all white. The water behind her is blue and the surf is white.
Louisa Drouet practices a yoga pose on a beach in Mexico. Photo courtesy of Louisa Drouet.

After the trip, the former broadcast journalist and now marketing business owner from Durango is considering starting a motivational clothing brand and speaking business.

“I want to be able to give back and help as many women as I can. Every single breast cancer story has its own dynamics. We’re all terrified and think, ‘what the heck has happened?’”

Celebrating her dad at a Rockies game

Drouet has been through some major challenges in her life, including abuse that she speaks about publicly to support other survivors. Drouet also had to deal recently with the sudden death of her father, with whom she had a wonderful relationship. Though never formally diagnosed, Drouet’s father lived with Asperger Syndrome. He was a baseball fan, music lover and math professor, who died unexpectedly just over a year ago. Then Drouet learned she had cancer. She found the golf-ball sized tumor in her left breast last November and got surgery quickly. Then Drouet had to face chemotherapy treatment that she dreaded even though she knew it was essential.

Louisa Drouet poses with her dad. They're at a baseball game in Los Angeles. Drouet lost her dad a year ago. She's been coping with breast cancer since his death.
Louisa Drouet loved to go to baseball games with her dad. He died suddenly a year ago. Since then, Drouet has battled breast cancer. She will celebrate finishing her treatments with a day of watching baseball and thinking of her dad. Photo courtesy of Louisa Drouet.

“It’s the hardest thing I’ve ever done in my life,” said Drouet, who has run marathons and endured months of rehab after blowing out her ACL on the ski slopes.

In spite of the physical and mental challenges of chemotherapy and wearing icy caps – cooled to 36 degrees below zero to preserve her hair – Drouet adores her team at the UCHealth Diane O’Connor Thompson Breast Center at the Anschutz Medical Campus.

Drouet will complete her radiation treatments in the coming weeks and gets to celebrate by attending the Cancer Awareness Game as the Colorado Rockies take on the Los Angeles Dodgers on June 3. The game will have even greater meaning because Drouet is from Los Angeles and used to love going to baseball games there with her dad.

“I adored my father very much and really miss watching sports with him,” Drouet said. “He loved teaching. He loved math. He was a giver and he loved sports to no end. I will feel like my father is with me on June 3.”

Finding a dedicated young women’s breast cancer center

Drouet found the lump in her breast back on Nov. 30 when she was 46. She was going to sleep when her hand brushed across her left breast and she felt what she instantly knew was a tumor.

Louisa Drouet poses in a meadow. She's wearing a light dress with pine trees behind her.
Louisa Drouet was shocked when she found a lump in her breast. Most women with breast cancer are older Drouet found care dedicated to younger women at the UCHealth Young Women’s Cancer Center. Photo courtesy of Louisa Drouet.

“I sat up and the room spun and then came to a hard stop,” she said. “I immediately knew what it was, but you’re in a state of shock and denial.”

She received instant support that night from her partner, Jake, and a friend whom she texted. The next day, Drouet sought help from her primary care doctor and a breast center at the hospital in Durango. She consulted with a general surgeon there, but was concerned when she learned that he only does about a dozen breast cancer surgeries a year.

He also suggested that she should get a double mastectomy, which led her to consider getting treatment elsewhere.

Drouet’s sister helped her find a team of pros at UCHealth University of Colorado Hospital: Dr. Elena Shagisultanova, Dr. Nicole Kounalakis and Dr. Rachel Rabinovitch. These doctors are part of the hospital’s dedicated Young Women’s Breast Cancer Program.

It’s rare for cancer centers to have special programs for women coping with breast cancer when they’re in their 40s or younger. Young women comprise only about 11 percent of new cancer diagnoses each year, according to the U.S. Centers for Disease Control and Prevention.

Because most women with breast cancer are in their 60s or 70s, young women can feel isolated and even more frightened when they receive a breast cancer diagnosis. Only a handful of academic medical centers around the country have a dedicated young women’s breast cancer center like the one at UCHealth.

When Drouet met with her team, she immediately found sensitive, compassionate doctors and caregivers who acted fast to provide treatment tailored to Drouet’s unique situation.

‘Am I going to die?’

Back in Durango, Drouet remembers shaking as ultrasounds confirmed that the suspicious lump in her breast was probably cancerous.

“Am I going to die?” she asked her technician.

“No, you’re not,” the woman told her.

An arm with bracelets. They have positive messages like "be brave."
Drouet wears bracelets with positive messages like “be brave.” Photo courtesy of Louisa Drouet.

Drouet now knows that it’s typical for women — especially young women ­­— to be terrified when they first get a cancer diagnosis. Then some go into shock and feel completely lost with no idea of what to do next.

Drouet felt that way at first. That’s when her sister jumped into action, began researching online and found the Diane O’Connor Thompson Center.

From Drouet’s first phone call with nurse navigator Brandi Welker at the center, she knew she had found the right team. The nurse was knowledgeable and caring and arranged for her to come in for her first appointment within days.

“I started crying. I thought, ‘I’m finally talking to people who know what they’re doing,’” Drouet said. “They were going to take care of me and be kind to me.”

Breast cancer more aggressive in young women

Breast cancer in young women typically is more aggressive and thus more dangerous than cancer in older women.

In Drouet’s case, her tumor showed signs that it was growing fast and beginning to spread.

“I had an over-achieving tumor,” Drouet said, illustrating her wry sense of humor.

Louisa Drouet was a broadcaster for many years. Here she does a cooking segment. She's wearing an apron and interviewing a chef.
Louisa Drouet worked in broadcasting for many years and now runs a marketing company. When she learned she had cancer, she looked for treatments tailored to younger women and used icy caps so she could keep her hair. Photo courtesy of Louisa Drouet.

Doctors also found evidence that her cancer had begun spreading to her lymph nodes, which meant she would need chemotherapy.

While surgery didn’t scare Drouet, the thought of losing her hair and feeling terrible during chemotherapy caused her significant angst. So she opted to go through surgery first. Back in Durango, the general surgeon had recommended removing both of Drouet’s breasts. But, her UCHealth surgeon, Kounalakis, opted for a more conservative treatment that she felt would provide just as much protection against a recurrence: a lumpectomy on the affected breast only. By doing the lumpectomy, Kounalakis was able to save Drouet’s entire right breast and part of her left breast, including her nipple.

Drouet decided to enjoy the holidays, then scheduled her surgery following New Year’s.

The surgery went well. Drouet described it as “a cakewalk,” easier than an earlier knee surgery. Unfortunately, pathologists did confirm that the cancer had spread to Drouet’s lymph nodes, which meant she definitely had to have chemotherapy to increase her chances for cure. Fortunately, Drouet had found her cancer relatively early, and it did not spread any further. The goal of chemotherapy in her case was to prevent cancer from coming back and to kill isolated cancer cells that could have been hiding in the lymphatic vessels or possibly elsewhere in the body.

The next challenge began when Drouet faced her biggest fear.

The toughest part: chemotherapy

“I know it should not be my first concern, but I simply did not want to lose my hair,” Drouet said.

Louisa Drouet poses with supporters on the last day of chemo. She is wearing a big blue cap. It's called a cold cap and it helps women keep their hair. She's holding a sign that says "Last chemo"
Louisa Drouet celebrated herfinal chemotherapy treatment with supporters and a sign. She used an icy cold cap during cheotherapy to try to keep as much of her hair as possible. Photo courtesy of Louisa Drouet.

She had spent years as a television anchor and reporter. (Click here to see some of Drouet’s news clips.) She loved her hair. And she’s a runner and yoga buff, who loves feeling and looking healthy.

“I didn’t want to lose my hair, eyelashes and eyebrows. I didn’t want to shave my head. I didn’t want people to think I was sick, but I wanted to live,” Drouet said.

Her hematology and oncology specialist in Aurora, Shagisultanova, understood and honored Drouet’s desire to keep looking and feeling like herself as much as possible during the chemotherapy.

Head shot of Dr. Elena Shagisultanova.
Dr. Elena Shagisultanova.

“For many women, it’s devastating to look different. Hair loss provides such a negative impact on self-confidence and overall sense of well-being. We think keeping your hair significantly improves the experience of chemotherapy,” Shagisultanova said.

“Breast cancer patients have enough on their plates already without losing their hair. We always support cooling therapies,” she said.

Drouet opted for a cold cap called a Penguin. Using it was tough, but icy treatments coinciding with chemotherapy helped her keep her hair.

“She looked as if she had not been on chemotherapy,” Shagisultanova said.

Young women’s cancer: ‘The stakes are high’

Shagisultanova prides herself on listening closely to each patient and working with her team to design custom, individualized treatment plans. She’s hands-on and gets to know each patient. Since Drouet was new to UCHealth University of Colorado Hospital and Shagisultanova wanted to be sure she could find the infusion center for her first chemotherapy treatment, she followed along to give a warm handoff.

Headshot of Dr. Nicole Kounalakis.
Dr. Nicole Kounalakis.

 

She instructs all her patients to call her Dr. Nova since her name is long and tough to pronounce. She uses both proven, traditional treatments and the newest clinical trials to get the best possible outcomes.

“My goal is to give them the best possible chances that the cancer will never come back,” she said.

And with young women, the team offers care suited to them.

“Our program is fairly unique,” Shagisultanova said. “In young women, the stakes are high. They have a higher risk of disease recurrence (meaning that cancer comes back). We want to do everything medically possible to keep them cancer-free, so they’ll have years and years of life ahead of them.”

Once breast cancer begins spreading to lymph nodes, it’s a clear sign that the cancer is aggressive.

“The lymph nodes are full of immune cells called lymphocytes that are supposed to recognize and kill the cancer cells,” Shagisultanova said. “If cancer cells can survive and grow in the lymph nodes, it tells us that the cancer is capable of spreading further and overcoming the body’s defenses.”

For cases like this, chemotherapy can reduce the chances of a cancer recurrence approximately by half, she said.

Since the chemotherapy was essential, Shagisultanova did her best to decrease Drouet’s stress and help her get through the treatments as painlessly as possible.

“The goal is to give full doses of chemotherapy and stay on schedule to maximize the chances for cure. So I will support the patient as much as necessary to complete the program,” she said.

Goal for young women, and all others: keeping cancer away forever

One of the newest discoveries is that it’s great to keep exercising during chemotherapy, Shagisultanova said.

Infusions typically make people feel exhausted.

Headshot of Dr. Rachel Rabinovitch.
Dr. Rachel Rabinovitch.

“It’s a chemical-induced fatigue,” Shagisultanova said.

But sleep doesn’t really help.

“It’s very counterintuitive, but walking and moving helps more than rest,” she said.

Drouet took her doctor’s advice and did her best to push herself out the door, even for simple walks.

In all, Drouet endured eight chemotherapy treatments spread out every other week over 16 weeks.

Shagisultanova said Drouet is doing great.

“I am optimistic. No oncologist can guarantee a 100 percent cure. But we are striving to give people a very good chance of being cured: in the range of 90 percent,” she said.

Birds, butterflies and beauty

Drouet is not quite done with treatments. She has to finish radiation. She has chosen to participate in a clinical trial that will shorten the duration of her radiation treatments, and radiation should be much easier than chemotherapy. Then she will continue to be monitored and will take the cancer-suppressing drug, tamoxifen, for up to 10 years.

Louisa Drouet holds her leg out to her left as she does a yoga pose on a California beach at sunset.
Louisa Drouet does a yoga pose at sunset on a California beach. Her dad took the photo before he passed away last year. Photo courtesy of Louisa Drouet.

But she’s feels like she has faced her toughest challenge and is eager to get on with the next phase of her life just as her father would have encouraged her to do.

“My father loved birding and the roses of southern California, and my sister, who helped me find my team of doctors, loves butterflies. We believe when we see a certain bird perched watching us or a butterfly flutter by that they are signs he is with us.”

Recently, when Drouet lay down for her first radiation treatment, she saw two small tattered stickers on the machine above her: a pink rose and a butterfly. She instantly felt her dad’s happy, healing presence just as she has while going through all of her cancer treatments.

“As far as I’m concerned, I’m cancer free. The chances that it will come back are low. I’m so thankful for the team I have, and the love and care they continue to show and give me,” she said.

Drouet is inspired to seek joy and beauty now that she has faced one of the biggest challenges that a young woman can tackle, breast cancer.

“It’s been a really tough year. Now I’m ready to go have some fun, help others and move optimistically forward with my life.”