{"id":29189,"date":"2020-02-14T09:54:47","date_gmt":"2020-02-14T16:54:47","guid":{"rendered":"https:\/\/www.uchealth.org\/today\/?p=29189"},"modified":"2022-06-23T11:32:23","modified_gmt":"2022-06-23T17:32:23","slug":"aggressive-treatment-for-multiple-sclerosis","status":"publish","type":"post","link":"https:\/\/www.uchealth.org\/today\/aggressive-treatment-for-multiple-sclerosis\/","title":{"rendered":"Young father\u2019s Rx for multiple sclerosis: aggressive care, hockey"},"content":{"rendered":"
<\/div>

 <\/p>\n

\"Jacob
Jacob Bailey with daughter Bobbi and one of seven horses he tends to at the family\u2019s stables east of Parker. Photos by Cyrus McCrimmon for UCHealth.<\/figcaption><\/figure>\n

Bobbi Bailey awoke from her nap grouchy. It happens: when you\u2019re going to be 2 in April, you share your displeasures and discomforts in ways that your dad Jacob, who\u2019s going to be 34 in April and knows discomfort better than most, doesn\u2019t. Fortunately, Katie \u2013 Bobbi\u2019s mom, Jacob\u2019s wife \u2013 has an idea.<\/p>\n

\u201cAlexa, play the Elmo Slide<\/a>,\u201d she commands the device in the kitchen of their home in the rolling hills east of Parker. With clap-clap-clap-claps of her arms, slides to the front, back, side and other side, and various jumps and turns, the toddler-mood switch flips. Mom and dad dance along, even if dad woke up exhausted and can\u2019t feel his right foot. It\u2019s not good, but it\u2019s a lot better than being debilitated and at times wheelchair-bound. That\u2019s how he was before he landed at the Rocky Mountain MS Center<\/a> clinic at UCHealth University of Colorado Hospital<\/a> on the Anschutz Medical Campus<\/a>.<\/u> Bobbi wouldn\u2019t exist had it not been for the Rocky Mountain MS Center. Nor would she exist had it not been for hockey. We\u2019ll get to that.<\/p>\n

\"Bobbi
Bobbi Bailey outside the house as parents Jacob and Katie look on.<\/figcaption><\/figure>\n

Jacob Bailey has multiple sclerosis<\/a>. He has good days and less-good days. On this day, he wears a gray John Deere sweatshirt and jeans. His brown hair is pulled back into a short ponytail, his beard thick but trimmed. It\u2019s a rough one, Katie tells me as Jacob walks to the kitchen for a cup of coffee. His pace and stiff gait fits someone who\u2019s going to be 74 in April more than it does a powerfully built man in his prime. He returns slowly to the family room and sits down on the couch not far from a tiny plush chair that\u2019s also an elephant. He sips his coffee and tells his story.<\/p>\n

Knocked loose MS symptoms<\/strong><\/h3>\n

Jacob grew up on a horse ranch in Riverton, Wyoming. The youngest of seven boys, he finished his associate\u2019s degree at Central Wyoming College in 2004, came down to metro Denver, went back home to Wyoming, and then in 2008 headed for western Colorado to work in the oil fields. He was working on a rig as a motor hand in June 2009 when he forgot to duck. His helmet clattered against a tray holding cables as thick as his fist and down he went. The plastic had saved his scalp, but when he got up, everything on his right side, from toes to cheek, eye to ear, was numb.<\/p>\n

He told a buddy, who suggested he might have pinched a nerve. The next day at work, Jacob had a hard time making it up the rig\u2019s stairs, and it was worse the day after that \u2013 or more accurately, the night after, seeing as he was working the 6 p.m. to 6 a.m. shift. By then his friends on the rig saw that something was seriously amiss and urged Jacob to see a doctor. An MRI scan at the hospital in Rifle noted telltale lesions in Jacob\u2019s brain and spinal cord. Additional tests confirmed that he had MS.<\/p>\n

He was 23 and otherwise strong as a bull. The headshot hadn\u2019t caused the autoimmune disease that attacks the myelin sheaths insulating his nerves, but it had somehow knocked its symptoms loose.<\/p>\n

Jacob kept working in the oilfields for more than a year, but his was no desk job. By September 2010, he was on medical leave which would lead to long-term disability. He went home to Riverton, in part to be with his father as he lost a battle with prostate cancer. Jacob\u2019s MS, while still technically relapsing-remitting<\/a>, progressed in unpredictable ways \u2013 it might be blindness in the right eye, or the inability to move his right arm, or his right leg ignoring him to the point that he needed a wheelchair. These problems tended to clear up, but on the whole Jacob felt the disease was slowly getting worse. He moved back to the Front Range in 2013, a decisive factor being the Rocky Mountain MS Center<\/a>, which cares for nearly half of the region\u2019s MS patients. There he came under the care of University of Colorado School of Medicine and UCHealth neurologist Dr. Enrique Alvarez<\/a>.<\/p>\n

Aggressive treatment for multiple\u00a0<\/strong>sclerosis<\/b><\/h3>\n

Jacob had been off treatment since 2012 and had relapsed to the point that he was back in a wheelchair. Alvarez and his colleagues\u2019 philosophy is to go after MS as aggressively as possible, as early as possible: once lesions form, the damage is done. That philosophy has worked well, Alvarez says.<\/p>\n

\u201cIf you keep getting lesions, they accumulate and bring about progressive disability,\u201d Alvarez said. \u201cIf we treat aggressively from the beginning and stop the relapses, we think we can stop \u2013 or at least slow down \u2013 the chance of that happening.\u201d<\/p>\n

\"Aggressive
Aggressive treatment for multiple\u00a0sclerosis has put Jacob back on his feet\u2026<\/figcaption><\/figure>\n

In addition to keeping Jacob out of a wheelchair, the aggressive treatments also helped Jacob get back to a favorite sport. He had been a hockey player since he was a kid, but hadn\u2019t been on the ice since his symptoms worsened in 2010. In recent years, he’s been able to play again, and that’s great news to Alvarez who says exercise is great medicine for everybody, and it\u2019s really good for MS patients.<\/p>\n

\u201cExercising and being healthy helps the nerves connect better,\u201d Alvarez said. \u201cIf we can control inflammation with drugs, patients who take care of themselves are much less likely to get into the progressive stage.\u201d<\/p>\n

Exercise key in MS care<\/strong><\/h3>\n
\"Aggressive
Aggressive treatment for multiple sclerosis also has put Jacob back on the ice.<\/figcaption><\/figure>\n

Jacob joined one team, then another, until he was playing on four of them. One, a coed team at South Suburban Ice Arena, brought in a sub one day \u2013 a defenseman and printing-industry expert named Katie. She took an interest in Jacob. \u201cHe had such energy on the bench and on the ice that I was completely captivated,\u201d she recalled. \u201cI couldn\u2019t get enough. The crush was real.\u201d<\/p>\n

She didn\u2019t know about the MS, and when she learned about it, it didn\u2019t change a thing.<\/p>\n

\u201cI had no idea that he had MS or that he was facing such challenges \u2013 physical, mental, emotional \u2013 on a daily basis. And I think he truly embodies someone who believes that attitude can really change your existence,\u201d Katie said.<\/p>\n

\"A
A Colorado Avalanche game courtesy of UCHealth\u2019s Moments to Shine program is a fitting honor for a hockey family in the truest sense of the term.<\/figcaption><\/figure>\n

A year later they were married. They asked Alvarez if it was safe to have kids. Of course, he said. Three years later they were dancing the Elmo Slide.<\/p>\n

Jacob has been busy outside of family and hockey. He is already a certified addiction counselor and a certified clinical trauma professional. He focuses on addiction counseling for what he described as \u201chighly violent clients.\u201d He\u2019s a few months from finishing a master\u2019s degree to become a licensed professional counselor. Part of his counseling practice involves equine therapy, for which he doesn\u2019t need to go far: The Baileys have seven horses on the property for which Jacob is the primary caregiver \u2013 not quite as demanding as working on an oil rig, but physical work nonetheless. Other charismatic mammals on the property include two big, friendly dogs and three yaks named Stella, Luna and Zeus.<\/p>\n

A team approach to multiple sclerosis<\/strong><\/h3>\n

Katie and Jacob are still playing hockey, though he\u2019ll stay off the ice on bad days \u2013 in particular, the numb foot can be a liability on skates, one that has launched him into the boards after catching an edge a sensate limb would have never abided. His energy and skills have declined, he knows, but he can still contribute. A team player who\u2019s drawn to the elegance behind the obvious, he prefers making assists to scoring goals.<\/p>\n

\u201cI\u2019m going to keep playing until I can\u2019t play,\u201d Jacob said. And when that day comes, if his right arm cooperates, he\u2019ll try sled hockey.<\/p>\n

For a few years now Jacob has been involved with the Dawg Nation Hockey Foundation<\/a> and has played in its annual Survivor Game<\/a>. Friends there nominated him for UCHealth\u2019s Moments to Shine<\/a> program, through which UCHealth works with community partners to recognize inspiring people and those supporting them. On March 15, he, Katie and Bobbi will be special guests when the Colorado Avalanche play the Las Vegas Golden Knights.<\/p>\n

\u201cI\u2019m super-excited,\u201d Jacob says.<\/p>\n

Bobbi won\u2019t remember the game, and she\u2019ll shortly outgrow the Elmo Slide. But assuming today\u2019s and tomorrow\u2019s MS drugs keep doing their jobs and Jacob stays his active self, he\u2019ll be dancing with her at her wedding soon enough.<\/p>\n","protected":false},"excerpt":{"rendered":"

  Bobbi Bailey awoke from her nap grouchy. It happens: when you\u2019re going to be 2 in April, you share your displeasures and discomforts in ways that your dad Jacob, who\u2019s going to be 34 in April and knows discomfort better than most, doesn\u2019t. Fortunately, Katie \u2013 Bobbi\u2019s mom, Jacob\u2019s wife \u2013 has an idea. […]<\/p>\n","protected":false},"author":23,"featured_media":29215,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[7],"tags":[167,184],"class_list":["post-29189","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-stories","tag-clinical-trials","tag-neurology"],"acf":[],"yoast_head":"\nA father's aggressive treatment for multiple\u00a0sclerosis- UCHealth Today<\/title>\n<meta name=\"description\" content=\"His doctors' philosophy was early and aggressive treatment for multiple\u00a0sclerosis. 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