{"id":19326,"date":"2018-11-02T08:47:13","date_gmt":"2018-11-02T14:47:13","guid":{"rendered":"https:\/\/www.uchealth.org\/today\/?p=19326"},"modified":"2023-04-20T14:10:27","modified_gmt":"2023-04-20T20:10:27","slug":"proceeds-from-restored-porsche-helps-those-whose-emergencies-left-them-voiceless","status":"publish","type":"post","link":"https:\/\/www.uchealth.org\/today\/proceeds-from-restored-porsche-helps-those-whose-emergencies-left-them-voiceless\/","title":{"rendered":"Proceeds from restored Porsche help those whose emergencies left them voiceless"},"content":{"rendered":"
<\/div>
\"Arnette
Arnette Schouten with the 1973 Porsche 911 Carrera RS whose proceeds led to the family\u2019s donation to the UCHealth University of Colorado Hospital Burn Center. (courtesy April Hagestad)<\/figcaption><\/figure>\n

Jerry Schouten hadn\u2019t drunk enough water before the race, and his cool suit seemed to not be working quite right. But Schouten, 65, had driven in hotter weather, and on Aug. 17, 2013, he steered his 1974 Porsche Carrera RSR as ably as ever \u2013 until the moment he passed out. His car veered off the High Plains Raceway track, smashed into a concrete barrier and burst into flames.<\/p>\n

Shortly before the\u00a0helicopter arrived to rush him to UCHealth University of Colorado Hospital<\/a> (UCH) on the Anschutz Medical Campus, Jerry told his wife of nearly 47 years: \u201cI\u2019ll be alright, Netty.\u201d<\/p>\n

He lived another three weeks, but those words were the last he would ever say to her. Five years later, Arnette Schouten\u2019s donation of the proceeds from the sale of another Porsche promises to help UCH intensive care patients like Jerry continue to communicate. But making a difference would take more than money.<\/p>\n

Locked in<\/strong><\/h3>\n

Patients in intensive care units are there because their lives are at risk. They are often sedated. They often rely on mechanical ventilation to do their breathing for them. But often, too, research has shown<\/a>, they\u2019re \u201cawake, alert, and responsive to verbal communication\u201d even if they can\u2019t themselves verbalize. This was the case with Jerry Schouten during his time in the UCH Burn Center.<\/p>\n

\":
: Meghann Griffin, left, works with Arnette Schouten as they calibrate the Tobii Dynavox to recognize Schouten\u2019s eye movements. Once calibrated the device uses two cameras below the screen to track eye movements that can enable typing and text-to-speech, web surfing and other activities familiar to computer users.<\/figcaption><\/figure>\n

Early on, he tried to speak. Neither Arnette nor the Burn Unit nurses could understand him. Burns to one arm and damage to the other made pointing, much less writing, impossible. And so, Arnette says, he lay there with his eyes closed \u2013 listening, family and friends assumed, but no longer trying to make himself understood. This despite Jerry always having been the family\u2019s \u201ctalker,\u201d as she put it.<\/p>\n

Skin graft surgeries and the amputation of his shattered left ankle happened without a word of his input. Even as he recognized he was losing the fight, despite being surrounded by loved ones, Jerry didn\u2019t have a chance to say goodbye.<\/p>\n

\u201cHe died without being able to tell us how he felt,\u201d Arnette said.<\/p>\n

Arnette made up her mind that she would give back to the UCH Burn Center. It would take a few years and the expertise of UCHealth specialists who had been looking into the very challenge Jerry had faced.<\/p>\n

\u2018Frustration, anger, extreme stress\u2019<\/strong><\/h3>\n

Meghann Griffin and Kaylee Skidmore, UCHealth speech-language pathologists, had been studying ways to help intubated patients like Jerry communicate. Beyond their own experience \u2013 both provided bedside care in the hospital\u2019s ICUs, and Griffin has specialist training in speech therapy for burn patients \u2013 there were compelling studies backing their belief that the work could help patients.<\/p>\n

In one, patients interviewed after mechanical ventilation reported<\/a> that their inability to communicate worsened their sense of distress and heightened frustration and anger. Another study<\/a> found that speech-language pathologists and augmentative and alternative communication (known as AAC) tools can help assuage the frustration, panic, anxiety, dehumanization and sleeplessness such patients reported. A UCH study pending publication found the inability to communicate to be the top complaint of those who had been intubated. Griffin and Skidmore had started working on ways to address all this.<\/p>\n

\u201cI can\u2019t tell you the amount of research that goes into the trauma that patients experience because they can\u2019t communicate when they\u2019re in one of the most vulnerable situations in their lives,\u201d Griffin said. \u201cThey can\u2019t talk to their family. They can\u2019t express their needs.\u201d<\/p>\n

The 911 Porsche RS<\/strong><\/h3>\n

For a quarter century, Jerry did club racing in events held by the Rocky Mountain Region Porsche Club<\/a> of America (Arnette did her share of driving, too). His Porches dated to the 1970s and 1980s. They weren\u2019t the fastest or the priciest, but Jerry\u2019s racing skills compensated for deficits in horsepower and handling. A few years back, he bought another one. It was old, too \u2013 a 1973 Porsche 911 Carrera RS. He told Arnette it would pay for their retirement one day.<\/p>\n

\"Jerry
Jerry and Arnette Schouten in Keystone in 2009, with granddaughters (from left) Adleigh, Alexa and Ashlynne. Jerry had recently restored the red Porsche 356. (Courtesy April Hagestad)<\/figcaption><\/figure>\n

\u201cAnd I said, \u2018Oh, yeah, right, Jerry. You just want to race it,\u2019\u201d Arnette said.<\/p>\n

He did race it for a bit, but he also did some research. He checked with Porsche in Germany and learned that this white car had once been light yellow. He had already noted that the car\u2019s major components had \u201cmatching numbers\u201d \u2013 meaning original parts. Friends told him he was crazy to race it. So he moved on to other cars and started work on restoring it with help from local Porsche mechanic and racecar builder Steve Rowe. But they both got busy and the project stalled.<\/p>\n

A week after Jerry died, Arnette reached out to Rowe.<\/p>\n

\u201cWe\u2019ve got to get this done. We\u2019ve just got to get it done, for Jerry,\u201d she told him.<\/p>\n

Her plans for the 911 RS, though, had nothing to do with retirement.<\/p>\n

Talking with one\u2019s eyes<\/strong><\/h3>\n

Griffin and Skidmore had been working on a program to help ICU patients better communicate for a solid year when they sat down with Arnette last spring. The 911 RS had sold, and Arnette wanted to donate the proceeds to the UCH Burn Center for exactly the sort of work they were doing. In the months that followed, Griffin considered an array of options across the gamut of technological sophistication. She and Skidmore settled upon three of them.<\/p>\n

First, for patients who like Jerry can\u2019t tap a screen, there would be a Tobii Dynavox<\/a>, a thick tablet computer with dual cameras to track a patient\u2019s eye movements. It then determines what the patient is focusing on and reacts according to the task at hand: recording the letter on a digital keyboard, selecting a preprogrammed phrase (the device can read words and phrases aloud), opening a web browser, launching a video call \u2013 about anything one can do on a PC.<\/p>\n

\u201cThat\u2019s what Jerry would have needed,\u201d Arnette said.<\/p>\n

Second, the speech-language pathology team will acquire several tablet computers with specialized software. Those will enable much the same for patients who can\u2019t talk but can tap. Third, they\u2019re going to distribute dozens of 18-inch by 12-inch whiteboards for use throughout UCH\u2019s intensive care units. The front side of the boards will have the letters of the alphabet for spelling things out and space to write; on the reverse side, there will be roughly 20 simple-but-vital phrases such as \u201cI\u2019m in pain,\u201d \u201cI\u2019m cold\u201d and \u201cI need my glasses.\u201d The idea is that nurses can start with the whiteboards and, based on the patient\u2019s needs, move on to tablets or the Tobii as needed, Griffin says.<\/p>\n

A chance to talk<\/strong><\/h3>\n

\u201cIt\u2019s going to allow patients to be more active in their care,\u201d Griffin said. \u201cThey\u2019re going to be able to get so much deeper in their conversations with family members, and just to express what they\u2019re feeling emotionally is a lot easier with something like this.\u201d<\/p>\n

\"The
The Tobii Dynavox in virtual-keyboard mode.<\/figcaption><\/figure>\n

She and Skidmore are planning a research project to determine\u00a0if and how the high- and low-tech additions improve ICU patient satisfaction and well-being. It\u2019s the sort of work that can change best practices far and wide.<\/p>\n

Arnette\u2019s generosity is going to help meet the needs of not just Burn ICU patients, but also those in ICUs throughout UCH.<\/p>\n

\u201cIt\u2019s massive,\u201d Griffin said. \u201cIt\u2019s a big deal.\u201d<\/p>\n

The Tobii Dynavox will come too late for Jerry Schouten. But Arnette has an inkling that her husband would have approved of this sort of gifting of their \u201cretirement.\u201d<\/p>\n

\u201cI think he would be proud of me,\u201d she said. \u201cI think it\u2019s cool that I was able to do it and that Meghann and everybody are just so thrilled with it, and that we\u2019ve found something that will be such a neat tool.\u201d<\/p>\n

Check out the CBS4 Denver story on Arnette Schouten\u2019s gift <\/em>here<\/em><\/a>.<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Jerry Schouten hadn\u2019t drunk enough water before the race, and his cool suit seemed to not be working quite right. But Schouten, 65, had driven in hotter weather, and on Aug. 17, 2013, he steered his 1974 Porsche Carrera RSR as ably as ever \u2013 until the moment he passed out. His car veered off […]<\/p>\n","protected":false},"author":23,"featured_media":19329,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[5],"tags":[4293],"class_list":["post-19326","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-innovative-care","tag-uchealth-burn-and-frostbite-center"],"acf":[],"yoast_head":"\nProceeds from restored Porsche help voiceless emergency victims<\/title>\n<meta name=\"description\" content=\"Proceeds from the sale of a 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