{"id":14143,"date":"2018-01-12T10:05:27","date_gmt":"2018-01-12T17:05:27","guid":{"rendered":"https:\/\/www.uchealth.org\/today\/?p=14143"},"modified":"2020-01-02T16:39:36","modified_gmt":"2020-01-02T23:39:36","slug":"virtualreality","status":"publish","type":"post","link":"https:\/\/www.uchealth.org\/today\/virtualreality\/","title":{"rendered":"Virtual reality takes patient from hospital to the beach"},"content":{"rendered":"
<\/div>
\"Hannah
Hannah Moraski, 24, comes to UCHealth Memorial Hospital a couple times a week to be treated for a rare blood disease. While at the hospital, she experiences distraction therapy\u00a0through virtual reality.<\/figcaption><\/figure>\n

Hannah Moraski decided at age 19 to let go of her childhood home in Vermont and head west to the wide open spaces of Colorado.<\/p>\n

With a free spirit and a strong will, the independent young woman who has \u201cfighter\u2019\u2019 tattooed across her left forearm, packed up her car with a few household belongings, trading in the pewter skies of Vermont for the cobalt blue skies of Colorado.<\/p>\n

Her new beginning was filled with aspirations to climb tall mountains, travel to even more places and meet new, excellent people.<\/p>\n

\u201cIt was one of the best decisions of my life,\u2019\u2019 she said.<\/p>\n

What she could not have imagined while cruising across the country, though, is what her life would become. She didn\u2019t know she\u2019d be reliant on UCHealth Memorial Hospital Central<\/a> and play a role in helping a health system provide a better experience for patients.<\/p>\n

After the long road trip, Hannah, now 24, had barely unpacked her few belongings when she was walloped with illness. She couldn\u2019t eat, shower or walk.<\/p>\n

\u201cI was essentially bedridden,\u2019\u2019 she said.<\/p>\n

\"Hannah
Hannah Moraski moved from Vermont to Colorado to experience wide-open spaces and gets out to hike as often as she can.<\/figcaption><\/figure>\n

Hannah made frequent trips to the Emergency Department<\/a>, and doctors were stumped. Hannah took prescription painkillers for the debilitating pain in her back, legs and abdomen that brought her a daily dose of misery.<\/p>\n

The diagnosis<\/h2>\n

After months of torment, Hannah was diagnosed with a rare blood disease — Acute Intermittent Porphyria \u2013 a genetic disease so rare that it affects five to 10 of every 100,000 people. In most people, symptoms never manifest and people live their lives not knowing they have the condition.<\/p>\n

For Hannah, though, the attacks were awful and she regularly went to the hospital, where she stayed a week at a time. During one hospital stay, she suffered cardiac arrest. During another, she hallucinated and screamed \u201cDon\u2019t take my baby,\u2019\u2019 but she doesn\u2019t have a child.<\/p>\n

She has to be careful how she lives her life. She doesn\u2019t drink alcohol, use tobacco or venture into situations that can cause too much stress because they can bring on an attack.<\/p>\n

Her life, however, revolves around her medical care. She comes two times a week to Memorial Hospital to receive infusions of panhematin, a drug that helps replace what her blood can\u2019t produce. Each session lasts 2.5 hours, and she passes time by reading, knitting and talking to her nurses.<\/p>\n

She also sees Dr. Uchenna Njiaju<\/a>, a medical oncologist at UCHealth Memorial Hospital Cancer Center.<\/p>\n

Distraction therapy<\/h2>\n

Hannah has been instrumental in helping UCHealth pilot a new virtual reality program\u00a0to help improve patients\u2019 experiences while they are in the hospital. Beginning in 2018, UCHealth will provide virtual reality experiences \u2013 trips to the beach or to the inside of Van Gogh\u2019s bedroom<\/a>, or to outer space. The VR headsets will be provided to patients who visit the hospital to receive infusions for chemotherapy, mostly, and other treatments.<\/p>\n

\"A
UCHealth will begin offering virtual reality to patients in the outpatient oncology units this year. It gives patients a chance to escape to places most of us have never been through vivid imagery and sound.<\/figcaption><\/figure>\n

Hannah said she\u2019s grateful for the VR experience at UCHealth because it breaks up the time she has to sit to receive the medicine, and it allows her to travel the world \u2013 at least in her mind.<\/p>\n

\u201cOne of the best things was just to feel like I wasn\u2019t in Colorado, and I wasn\u2019t in a hospital. I was somewhere else. I can\u2019t really travel because the stress of flying can cause an attack, and I would miss my infusions, which keep me out of the hospital. I can see and feel like I\u2019m somewhere else.<\/p>\n

\u201cIt makes you feel like you\u2019re on a vacation, if just a little while.\u2019\u2019<\/p>\n

Dr. Njiaju explained that Acute Intermittent Porphyria \u201cresults from deficiency of an enzyme called porphobilinogen deaminase. This enzyme is involved in a complex pathway that leads to production of the heme pigment in many tissues, but especially bone marrow and liver.\u2019\u2019<\/p>\n

\"Hannah
UCHealth partnered with Rendever, a Boston-based virtual reality company,\u00a0to pilot a new program at UCHealth. Research shows the response to the distraction therapy is overwhelmingly positive \u0096 88 percent of the patients participating would use VR again, and 94 percent of their caregivers participating would use it again. Here, Hannah Moraski takes a virtual trip to the beach.<\/figcaption><\/figure>\n

Dr. Njiaju said that with inadequate PBGD, compounds like porphobilinogen and delta-aminolevulinic acid can accumulate in the body, causing negative effects such as abdominal pain, nerve damage, seizures and even coma.<\/p>\n

\u201cIn affected individuals, AIP attacks can be triggered by infection, hormonal changes in the menstrual cycle, and certain medications.\u00a0The medication that Hannah receives at the hospital \u201cacts by suppressing production of the very same products that would otherwise accumulate to cause negative effects in AIP.\u00a0It can be given to treat acute attacks, and also given in the healthy state to prevent attacks,\u2019\u2019 Dr. Njiaju said.<\/p>\n

In piloting the virtual reality program, UCHealth partnered with Rendever<\/a>, a Boston-based virtual reality company, and the response to the distraction therapy is overwhelmingly positive \u2013 88 percent of the patients participating would use VR again, and 94 percent of their caregivers participating would use it again, according to Nikki Caputo, director, experience and innovation, who researched the initiative with Sonica Rooke, market research manager for UCHealth.<\/p>\n

\u201cIt\u2019s extremely important to understand virtual reality, or any new technology, through the eyes of the patient.\u00a0 Each emotional and physical response to the VR helps us connect the technology in a more meaningful way. Technology should never replace human experience or interaction and it\u2019s very important for us to make sure we have a balance,\u2019\u2019 Caputo said.<\/p>\n

The 360-degree visual experience recently took Hannah to a virtual beach. With the headset on and the video in vivid color, Hannah said: \u201cThere are waves crashing at me. I look around and see some sand next to me. I look ahead and see an island and mountains in the distance.<\/p>\n

\u201cThe virtual reality is extremely exciting. I can\u2019t travel and I love to see different places. It gives me the opportunity to see other things and almost travel,\u2019\u2019 she said. \u201cVery few people have the opportunity to go to the bottom of the ocean and see what\u2019s down there, or to go into space or to see the Great Wall of China, and go here or there and that\u2019s why this is so much fun.\u2019\u2019<\/p>\n

Hannah said she will participate in a clinical trial to help physicians discover better treatments for acute intermittent porphyria but she realizes that much of her life will revolve around medical care for the disease.<\/p>\n

\u201cI know that I am not going to have a stereotypical future, and I can relate to all of those people who don\u2019t have a stereotypical future, but life goes on no matter how crazy your life becomes.\u2019\u2019<\/p>\n

Facing such a serious disease head-on has reinforced the qualities that have always been a part of Hannah. She\u2019s an independent, free spirited fighter. She spends time hiking, doing yoga, using essential oils, reading and making jewelry \u2013 intricate cuffs.<\/p>\n

\u201cI\u2019m living life \u2013 it\u2019s a different life than I thought it would be, but it is OK,\u2019\u2019 she said. \u201cI had to find myself in other ways because when this happened, it was the worst of the worst.<\/p>\n

\u201cBut it makes you stronger. It helps you say, \u2018you\u2019re good enough.\u2019 This disease doesn\u2019t define you and you can help other people. If you are strong, it inspires others to be strong.\u2019\u2019<\/p>\n","protected":false},"excerpt":{"rendered":"

Hannah Moraski decided at age 19 to let go of her childhood home in Vermont and head west to the wide open spaces of Colorado. With a free spirit and a strong will, the independent young woman who has \u201cfighter\u2019\u2019 tattooed across her left forearm, packed up her car with a few household belongings, trading […]<\/p>\n","protected":false},"author":20,"featured_media":14153,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[5],"tags":[493,1511,3405],"class_list":["post-14143","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-innovative-care","tag-patient-experience","tag-uchealth-memorial-hospital","tag-virtual-health"],"acf":[],"yoast_head":"\nVirtual reality takes patient from hospital to the beach - UCHealth Today<\/title>\n<meta name=\"description\" content=\"UCHealth patients who spend a long time at a hospital rave about virtual reality in the hospital. 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